Welcome to SarahInks.com! We hope you'll spend some time to learn about Sarah and Juvenile Batten Disease. With your help, research will continue to find a cure for this rare disease.

Shielding Sarah
Sarah Inks may never know the pride of earning a college diploma. She may never know the joy of that first bridal kiss or a newborn child. And she may never know she's dying. That's the way her parents want it. Sarah has a degenerative genetic disorder that destroys brain cells until its victims can't walk, talk or eat. They usually die before they turn 21. Since she was diagnosed with Juvenile Batten Disease in the spring, the 9-year-old has gone blind. Read more

Fundraising For Sarah
A special account has been established should you wish to send Sarah a direct donation. Click here for more info.

Recent News:

Sarah and her family were recently surprised by friends who held a fundraiser for her.  The event was covered in the Omaha World Herald newspaper.  You may read a PDF version of the article by clicking here.  

(You can get free Adobe Acrobat Reader here to read the article if needed).

Here is a direct link to the story on the Omaha World Herald site:

Sarah’s family and friends wish to extend heartfelt appreciation to the Omaha World Herald for allowing us to use their article on our web site.